Bimba con rara malattia metabolica: intervento del Ministero

Mercoledì
06:29:59
Gennaio
13 2010

Bimba con rara malattia metabolica: intervento del Ministero

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A seguito dell’appello rivolto al Ministro della Salute prof. Ferruccio Fazio dalla mamma di Giugliano in Campania - per ottenere un farmaco indispensabile per la sua bambina affetta da un rarissima malattia metabolica da deficit di piridossamina 5 fosfato ossidasi, curabile solo con la somministrazione ripetuta del farmaco “Piridossalfosfato” , prodotto negli USA, il Ministero ha contattato l’Assessore alla Sanità della Regione Campania Prof.

Mario Santangelo e si è convenuto che su specifica disposizione regionale l’Azienda Ospedaliera Universitaria Federico II di Napoli assicurerà in ogni caso la fornitura gratuita del farmaco. Il Ministro Fazio ha inoltre invitato l’Agenzia Italiana del Farmaco ad offrire ogni eventuale necessario aiuto e collaborazione alle strutture sanitarie interessate, in caso di difficoltà nel reperimento del farmaco in questione.

foto -© Silvia M. Carrassi di repertorio

Source by Ministero_della_Salute


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