Bébé Pia: S'il était autorisé en Belgique, le Zolgensma pourrait-il coûter 2 millions d'euros ?

Vendredì
14:21:57
Septembre
20 2019

Bébé Pia: S'il était autorisé en Belgique, le Zolgensma pourrait-il coûter 2 millions d'euros ?

Les médicaments nouvellement autorisés sur le territoire doivent suivre une procédure complexe pour afficher un prix. Une commission fixe un plafond qui prend en compte la valeur thérapeutique mais aussi la plus-value pour le patient et la rentabilité du traitement pour l'INAMI

View 3.8K

word 195 read time 0 minutes, 58 Seconds

L’amyotrophie spinale de Type 1 qui touche la petite Pia de 9 mois est une maladie ultra-rare. En Belgique, elle a été diagnostiquée chez 12 enfants par an en moyenne, d'après le professeur Laurent Servais, professeur expert en maladie génétique. Depuis septembre 2018, les patients atteints peuvent se faire rembourser un médicament le nusinersen, autrement appelé Spinraza par le laboratoire pharmaceutique qui l'a développé. Un médicament qui permet d'"offrir une meilleure qualité de vie aux personnes qui en sont atteintes.

Pour les patients jeunes, un traitement avec ce médicament peut même faire la différence entre la vie et la mort", s'était réjoui Maggie De Block, la ministre fédérale de la Santé publique lorsqu'elle avait annoncé le remboursement de ce médicament orphelin. / dhnet.be

Source by De_rédaction


LSNN is an independent editor which relies on reader support. We disclose the reality of the facts, after careful observations of the contents rigorously taken from direct sources, we work in the direction of freedom of expression and for human rights , in an oppressed society that struggles more and more in differentiating. Collecting contributions allows us to continue giving reliable information that takes many hours of work. LSNN is in continuous development and offers its own platform, to give space to authors, who fully exploit its potential. Your help is also needed now more than ever!

In a world, where disinformation is the main strategy, adopted to be able to act sometimes to the detriment of human rights by increasingly reducing freedom of expression , You can make a difference by helping us to keep disclosure alive. This project was born in June 1999 and has become a real mission, which we carry out with dedication and always independently "this is a fact: we have never made use of funds or contributions of any kind, we have always self-financed every single operation and dissemination project ". Give your hard-earned cash to sites or channels that change flags every time the wind blows , LSNN is proof that you don't change flags you were born for! We have seen the birth of realities that die after a few months at most after two years. Those who continue in the nurturing reality of which there is no history, in some way contribute in taking more and more freedom of expression from people who, like You , have decided and want to live in a more ethical world, in which existing is not a right to be conquered, L or it is because you already exist and were born with these rights! The ability to distinguish and decide intelligently is a fact, which allows us to continue . An important fact is the time that «LSNN takes» and it is remarkable! Countless hours in source research and control, development, security, public relations, is the foundation of our basic and day-to-day tasks. We do not schedule releases and publications, everything happens spontaneously and at all hours of the day or night, in the instant in which the single author or whoever writes or curates the contents makes them public. LSNN has made this popular project pure love, in the direction of the right of expression and always on the side of human rights. Thanks, contribute now click here this is the wallet to contribute


Similar Articles / Bébé P...d'euros ?
from: ladysilvia
by: Apple