MALATTIE RARE: CAMPAGNA DI’INFORMAZIONE NELLE SCUOLE

Martedì
16:13:56
Maggio
14 2013

MALATTIE RARE: CAMPAGNA DI’INFORMAZIONE NELLE SCUOLE

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Roma: Nel corso dell’incontro del 13 maggio, presso lo Sportello Malattie Rare del Policlinico Umberto I di Roma, alla presenza del Sindaco On. Gianni Alemanno e del Direttore Generale Dott. Domenico Alessio, è stato presentato il Progetto Regionale per la Campagna d’Informazione nelle scuole e nel territorio.

“Presso lo Sportello Malattie Rare del Policlinico aperto nel febbraio 2012, vengono seguiti circa 387 dei 409 tipi diversi di malattie rare riconosciute dal Ministero della Salute e circa 6.657 pazienti”, ha dichiarato il prof. auro Celli, responsabile dello Sportello.
Grazie al Comune di Roma, il Policlinico Umberto I, il Provveditorato agli Studi, in collaborazione con le numerose Associazioni di Volontariato ONLUS, partirà a breve la Campagna d’informazione nelle scuole, per tutto il personale docente e non, per i pediatri di Base e i Medici di Medicina generale, proprio per la prevenzione e il riconoscimento delle Malattie Rare e che potrebbe anche evitare eventuali ricoveri in emergenza inappropriati.

“Promuovere la formazione di insegnanti e medici pediatri, affinché conoscano nei dettagli l’approccio a questo tipo di patologie e affianchino i bambini nella loro quotidianità, facendoli sentire meno soli e spaventati da una realtà con la quale è difficile convivere,” queste le parole di Elisabetta Campus, afflitta da una di queste patologie rare.

Il Direttore Generale Domenico Alessio ha ringraziato tutti i presenti e in particolare il Sindaco per la sua sensibilità verso il Policlinico e tutti i malati.

Source by UNI_ROMA


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